WHO COMES TO ME?

ATTENTION FRIENDS OF THE CAUSE OF histiocytosis: last night, zepeando channels, I saw a program on the H & H that was primordial dwarfism, a rare disease. That program, the main issue was Nicollete, a little girl of nine years who lives in New Zealand, and amazingly, she is the only person in your country with that disease. In the USA, every two years, he has a small conference of people. Nicollete crossed the world to meet people like her. What caught my attention was that in the program during these conferences, geneticists examine all children and study cases. PEOPLE, THIS IS WHAT WE WANT. WHAT I'M THINKING IN A FUTURE BRIEF IN ORGANIZING AND CAN DO SOMETHING LIKE HERE IN BRAZIL, urging the international medical community for this debate, for these studies. The Histiocytosis is also a rare disease that does not have many reports in the medical literature, which does not have many studies. It is up to us as parents, we mobilize ourselves this question, we raise this flag more. Who's coming with me? Let's grow up this idea. Our community here is working, is a form of support unprecedented for me is great to share and talk with parents who have gone through everything I'm going through. If that reality is concrete now, why not dream beyond? WHO COMES TO ME?

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